Hope for Abi as NHS could fund life-saving drugs

By The Newsroom
Published 12th Jul 2015, 10:00 BST
andy and jo longfellow with daughter abi aged 12 ..nhs refuse kidney drug treatment ,her dad is to give her a kidney transplant thou a drug to block disease is being refused so the operation is on hold.....also pictured elder sister jessandy and jo longfellow with daughter abi aged 12 ..nhs refuse kidney drug treatment ,her dad is to give her a kidney transplant thou a drug to block disease is being refused so the operation is on hold.....also pictured elder sister jess
andy and jo longfellow with daughter abi aged 12 ..nhs refuse kidney drug treatment ,her dad is to give her a kidney transplant thou a drug to block disease is being refused so the operation is on hold.....also pictured elder sister jess
Brave Abi Longfellow is one step closer to getting the life-saving drug denied to her by the NHS.

The 12-year-old suffers from a one-in-a-million kidney disease called Dense Deposit Disease (DDD), which stops the kidneys from filtering waste from the blood.

But health bosses are refusing to pay for the Eculizumab drug, which costs £393,000 a year, because her condition is too rare to be covered by the national funding policy, but not rare enough to qualify as an exceptional case.

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And the drugs are kept under lock and key at Leeds General Infirmary where she is treated.